Follypalooza cancer Benefit & fundraiser for Diann Shaddox Foundation

I had a great time at the Follypalooza Cancer Benefit and Diann Shaddox Foundation fundraiser on Folly Beach, SC Saturday October 18. 

It was a spectacular day beautiful blue skies, soft breeze and temperatures in the the 80's a picture perfect day to be on an island by the beach. 

I was still amazed how many people I talked to that hadn't heard of Essential Tremor. I did meet many people who knew of someone, friend or family member, that had 

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tremors, but hadn't gone to the doctor. Of course, most people didn't have any idea that children & teens had ET. The stereotype is still an old person's disorder. 


I'm adamant to change this perception. I was also happily surprised that so many people said thank you for bringing awareness and raising funds for grants to doctors to find a cause and cure for movement disorders

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I had so many wonderful people stop by my tent, give their condolences for my son Rick who died in May of a cancerous brain tumor. 

They wanted to know the story of how such a strong young man could be taken from this world in such a short period of time. It was therapeutic to talk about my son, who had Essential Tremor, and I was grateful for all the lovely words.

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I talked to people from Germany, UK, and people from all over American like Gail, Kim, Dale, Lorraine, Ron, Katherine, Tammy, Kelly, the list goes on and on. 

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A great friend Wanda

I visited with many friends like Wanda and talked about my books. 


I met people with Essential Tremors and even met a couple of people with Parkinson's like Jim. 

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Saturday was a wonderful, exhilarating, and tiring day full of so much hope that DSF will be able to bring awareness to the world. I sold books, talked about movement disorder, laughed and even got sunburned. 

I do want to say thanks to everyone who stopped by my tent and took the time to listen to my story of living with Essential Tremor. 
DSF will continue on and I hope you will join me on my journey.

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