I hid my tremoring hands from people whenever I could for years, because I was tired of the stares and snide and malicious remarks. When I'd tell them I had Essential Tremor they'd just stare, since no one has ever heard of ET.
Today, it has became impossible to hide my hands, and still at times so embarrassing when I'm out with people and try to eat or drink.
But, I won't hide from reality anymore and I will bring awareness to help others, over 12 million Americans with movement disorders and millions more worldwide. I'm asking for help, to raise funds, fundraisers and anything you can do to support Diann Shaddox Foundation. We have to bring awareness to Essential Tremor.
Please don't judge people when you see them out in public with shaking hands or head. Most people with Essential Tremor or any movement disorder hides from people. Many with movement disorders become disabled at worst and feel frustrated or embarrassed at best. Spilling drinks, splashing food onto themselves and others, dropping things and the most humiliating is your hands and head shaking is so degrading.
Quality of life is a big issue for people with movement disorders. Daily activities such as feeding, drinking, grooming and writing become difficult if not impossible. Many people with movement disorders are too embarrassed to go into public and so remain isolated in their homes. Stereotypes shape the way we think about people and situations.
With awareness, people with movement disorders can come out of hiding; live normal lives as anyone with a disability.
Please go to www.diannshaddoxfoundation.org and donate, every penny counts and will bring us closer to finding a cause and cure. DSF’s funds will be used for awareness and will be distributed for research to help find the cause and a cure for Essential Tremor.
This is Daniel's story